For years,
I suffered with a mental disability. I still do -- no one has found a cure for manic depression (bipolar disorder) yet. During
those crisis years, though, nobody knew anything was really wrong with me. I was experiencing a wild rollercoaster ride of
frightening highs and lows that put my life in jeopardy, but my disability was completely invisible.
Granted,
I was behaving rather erratically--flying from New York to Tokyo to Paris
on business three to four times a month, counterfeiting art and smuggling tens of thousands of dollars back into the United States. At the same time, I was drinking heavily and
indulging in drugs (self-medicating my mental illness), engaging in sex with complete strangers that I would meet in bars
and clubs, staying up for days on end, and in general living on the edge. But my disability remained an invisible one.
Friends
and family were convinced I was functioning just fine because I was efficient, productive, and successful. I had everybody
fooled with my illness. While my manic depression remained undiagnosed, I secretly wished that my disability was a physical
one--one that others would notice. Maybe people would be supportive and help me if I had diabetes or, God forbid, cancer.
Maybe I needed to show up to the next family function in a wheelchair to get somebody's attention. I was helpless living with
this invisible illness.
Once I
was diagnosed, though, and given what I refer to as my "death sentence," things changed quickly. And no, my family and friends
did not come rushing to my side to support me in battling against my illness. Somehow I fantasized that this was going to
happen.
All of
a sudden I realized the stigma of having a mental illness--it hit me smack between the eyes. And the stigma was almost as
bad as having to come to terms with the fact that I was mentally ill and needed treatment.
The stigma,
I realize now, "started" with me. I initiated it. It was my own fault and a result of my own naiveté at age 28.
When the
doctor diagnosed me and used the words "manic depression" and "bipolar," I had no idea what he was talking about. "Manic"
sounded like "maniac" and "bipolar" sounded like "polar bear," so I was completely confused. I was under the impression that
the illness was degenerative and that I probably wouldn't live to see my next birthday. I asked the doctor how many other
people there were like me--2.5 million people in America
alone. He tried to calm me down and talk me through the diagnosis, but I was self-stigmatized by my new label. And then, of
course, he had to remind me that I was now part of a category of people called "mentally ill." Oh, God. I was a lunatic, a
freak, a psycho, a crack-up, and a mental case.
When I
left his office on the Upper East Side of Manhattan and walked home across Central Park that
snowy morning, I imagined being forced to have electroshock therapy like Jack Nicholson in One Flew Over the Cuckoo's Nest.
I persuaded myself that I was overreacting, taking this too far. That could never happen to me. But actually, I wasn't taking
it too far. Less than three years later I found myself in the operating room of a psychiatric hospital in Manhattan, lying
on a gurney with electrodes attached to my head and receiving electroshock treatments--200 volts of electricity through my
brain.
The stigma
first hit me from the "outside world" with a little help from the written prescription my doctor gave me. It was filled out
for medications thought to control my manic depression. The prejudice began then.
On seeing
it, my own neighborhood pharmacist remarked, "Your doctor's putting you on all of this medication? Are you okay?" I didn't
respond. I paid for my four prescription drugs and left the pharmacy wondering exactly what he meant by "all of this."
Was I some
sort of "mental case" because I was now taking four different medications? Did the pharmacist know something about my condition
that I didn't know? And did he have to say it in such a loud voice, just hours after my diagnosis? No, he didn't. That was
unkind. It seemed that even the pharmacist had an issue with mentally ill patients--and trust me, mentally ill patients in
Manhattan were the "bread and butter" of his business.
Next I
had to tell people about the diagnosis. Scared to death, I waited a week until I got up the nerve to ask my parents to dinner.
I took them for a meal at one of their favorite restaurants. They seemed suspicious. Did I have something to tell them? They
automatically assumed I was in some sort of trouble. It was written over both of their faces. Assuring them that I wasn't,
but had some news that might surprise them, I just spilled the beans.
"Mom, Dad,
I've been diagnosed as a manic depressive by a psychiatrist," I said. There was a long silence. It's as if I'd told them that
I had two months to live (interestingly, the same reaction that I had when my doctor told me). They had a million questions:
"Are you sure?" "Where did it come from?" "What's going to happen to you?" Although they didn't come out and say it, they
seemed concerned that I was going to lose my mind. Oh, God. Their son had a mental illness. Was I going to end up living with
them for the rest of their lives? And of course, they wanted to know if it was genetic. My telling them that it was didn't
exactly make for a pleasant conclusion to the dinner. Not only were they now faced with the stigma that their son had a mental
illness, but the stigma that mental illness ran in the family.
With friends,
it was easier to break the news. They seemed to know more about manic depression and were supportive of my getting well and
staying on a medication regimen. But all hell broke loose when medication didn't manage my illness and I opted for the last
resort-- electroshock therapy.
My friends
had a really mentally ill friend who had to be hospitalized and "shocked" to maintain an even keel. This was too much for
some to handle, and those people simply disappeared. Nobody seemed to want a friend who was now officially a psychiatric patient
and, after electroshock, a certifiable zombie.
In fact,
everybody seemed frightened of me, including my neighbors, my landlord, and shopkeepers who I had known for years. They all
looked at me funny and tried to avoid making eye contact with me. I, however, was extremely up-front with them. I told them
all about my illness and was able to explain my symptoms as well as my treatment to them. "Have faith--one day I'm going to
be just fine," I seemed to cry out inside. "I'm still the same Andy. I've just slipped a bit."
As there
weren't many who knew much about my mental illness, a lot of people had the attitude that I had the capability to "kick it"
and get better instantly. This was the most frustrating attitude for me. My manic depression was ravaging my life. But because
nobody could see it, many people thought it was a figment of my imagination. Soon I started thinking this too. But when the
symptoms--the racing thoughts, hallucinations, and sleepless nights--were out of control, the fact that I really was ill was
reassuring.
The guilt
I felt for having a mental illness was horrible. I prayed for a broken bone that would heal in six weeks. But that never happened.
I was cursed with an illness that nobody could see and nobody knew much about. Therefore, the assumption was that it was all
in my head, rendering me crazy and leaving me feeling hopeless that I'd never be able to "kick it."
But soon,
I decided to cope with my illness like it was a cancer eating away at me and I fought back. I dealt with it like it was any
physical illness. I dumped the stigma and focused on recovery. I followed a medication regimen, as well as my doctor's orders,
and tried not to pay attention to others' ignorant opinions about my illness. I fought it alone, one day at a time, and I
eventually won the battle.
Andy Behrman is the author of Electroboy: A Memoir of Mania, published by Random House. He maintains
the website www.electroboy.com and is a mental health advocate and spokesman for Bristol-Myers Squibb. The film version of
Electroboy is being produced by Tobey Maguire. Behrman is currently working on a sequel to Electroboy.
©2007
by Andy Behrman. (url: http://bipolar.about.com/od/electroboy/Electroboy.htm ). Used with permission of About, Inc. which can be found online at www.about.com. All rights reserved.